Patient Map

The original goal of the Melorheostosis.org was to connect patients with each other, as well as doctors, researchers, and all available resources. To that end, we have been building a melorheostosis community and working toward treatments and a cure since 2001.

We’re striving to be that light in the darkness to patients. By sharing your story and putting a pin in the map, you can connect with others around the world. Use the form to add your location to our patient map–showing your fellow patients they’re not alone, and highlighting the vast presence of melorheostosis patients worldwide.

Click on the icons in the map below to learn more about melo patients around the world.