Association Events
Attend Our Next Conference
Stay tuned for more details on our 15th International Conference in 2027. We look forward to bringing patients and supporters together with researchers and doctors as we learn from the latest research and champion the work towards treatments.
Our international conference is open to all to attend as we explore the latest research, offer patient and supporter connections, and host patient case studies for researchers to see patients in 1:1 meetings. Patients and supporters often leave feeling a greater sense of connection to the community and empowered to manage their care journey using the latest research and experience shares from fellow patients.
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Past Events
Explore conference recaps below. Resources and presentations are shared when permission is given by the presenters. Please note that there are many cases when research shared at the conferences is preliminary or not published, and cannot be shared publicly.
Sign Up For Our Newsletter
Connect with the Melorheostosis Association by signing up for our newsletters, conference and event announcements, research updates, and patient news. Email is the best way to stay connected to all Association news and events. We share patient stories, recent research publications, ways to support the mission of the organization, and rare disease advocacy efforts.