The Second International Melorheostosis Conference
August 24-26, 2004
Michigan State University
The Second International Melorheostosis Conference, was a success far beyond our most optimistic expectations. Melorheostosis patients from throughout the U.S. and as far away as England came to meet with Dr. Fred Kaplan, Dr. Jill Helms, Dr. Eileen Shore, and Dr. Michael Whyte from our Scientific and Medical Advisory Panel, along with nine other well-known experts. We are grateful beyond words to all who participated — for their time, their wisdom and the invaluable information they shared. We also offer heartfelt thanks to Michigan State University for their generosity in hosting the Conference and Lyn Pickel and Alice Albin for their tireless efforts to make this Conference a reality. For detailed information about the Conference, please see the report in the Melorheostosis Newsletter, by clicking on the link provided on the homepage of this website.
Following up on some of the issues raised at the Conference, The Melorheostosis Association Board of Directors held a meeting October 15 – 17 in Winter Springs, Florida. While there, the Board consulted with Scientific/Medical Advisory Board member, Jeannie Peeper concerning the amazing success of her organization, the International Fibrodysplasia Ossificans Progressiva Association (IFOP). We are extremely grateful to Jeannie — and her warm and gracious mother — for giving us the benefit of her 17 years of experience in developing this wonderful organization. Jeannie, you are an inspiration to us all and we are truly grateful.
Agenda
2nd Annual Conference of the Melorheostosis Association:
“Symposium Presentations and Selected Patient Case Studies with the
Scientific/Medical Advisory Panel”
August 24-26, 2004
Radiology Building Auditorium
Michigan State University
August 24, 2004
7:30p Welcome Reception, Kellogg Center
August 25, 2004
8:00a Coffee – Radiology Atrium
8:30 Ms. Lyn Pickel, President, Melorheostosis Association
Welcoming Remarks & Introductions
8:40 Dr. Fred Kaplan, M.D.
Opening Statements & Scientific/Medical Panel Introductions
9:00 Dr. Jill Helms, Ph.D, D.D.S.
“The Etiology of Melorheostosis: Clues from Developmental Biology”
10:15 Break
10:45 Dr. Pam Robey, Ph.D, Chief, Craniofacial & Skeletal Diseases Branch NIH/DHHS “Stem Cell Biology and Melorheostosis: A Germ Line or Somatic Gene Disorder”
12:00p Lunch – Radiology Atrium
Keynote Speaker: Dr. Cam Riessinger, Ph.D, Psychologist, Sparrow Health Sys.
“Pain Coping Tools for Effective Pain Management from a Psychological Perspective”
1:30 Dr. Michael Whyte, M.D.
“Melorheostosis: Clues and Connections with Other Sclerosing Bone Dysplasias”
2:30 Dr. Eileen Shore, Ph.D
“Melorheostosis: Clues from Progressive Osseous Heteroplasia”
3:15 Break
3:30 Dr. Jeffrey King, M.D., Clinical Assistant Professor, Michigan State University
“Orthopedic Aspects of Melorheostosis”
4:30 Dr. Fred Kaplan, M.D. – “Why Current Treatments Fail”
6:30 Dinner – Kellogg Center
Keynote Speaker: Dr. Fred Kaplan
“What’s Up the Road?”
August 26, 2004
Concurrent Sessions
Session A
For Regular Conference Attendees
7:45a Coffee
8:00 Melorheostosis Association Meeting
9:30 Dr. Laura McCabe, Ph.D, Associate Prof., MSU Physiology & MSU Radiology
“Bone Dynamics: Response to Exercise, Aging and Disease”
10:15 Dr. Mark DeLano, M.D., Assistant Prof., MSU Radiology
“An Overview in Radiologic Imaging”
11:00 Dr. Jeffrey Kovan, D.O., Director, MSU Sports Medicine
“Benefits of Physical Therapy in Establishing Improved Function, Strength and Pain Control”
Session B
Scientific/Medical Panel Case Studies
(by invitation only)
8:45a Coffee
9:00 To Be Arranged
9:20 TBA
9:40 TBA
10:00 TBA
10:20 TBA
10:40 TBA
11:00 TBA
11:20 TBA
11:40 TBA
12:00 P Lunch — Radiology Atrium
Keynote Speaker: Dr. Elizabeth Alexander, M.D., MSU University Physician
“Unusual Diseases, Ordinary People, and Finding the Right Doctor Patient Fit”
Session A (cont’d)
For Regular Conference Attendees
1:30p Dr. Rachel Fisher, Ph.D, Professor, MSU Pediatrics/Human Dev.
“How Genetics Can Help Us Understand Disease”
2:15p Dr. Janet Osuch, M.D., Professor, MSU Surgery
“Gaining Momentum: Personal Reflections, Advocacy and Epidemiology”
Session B (cont’d)
Scientific/Medical Panel Case Studies
(by invitation only)
1:30p TBA
1:50 TBA
2:10 TBA
2:30 Closed Scientific/Medical Panel Session
3:15 Break
3:30 Dr. Fred Kaplan, M.D.
“Conference Summary, Impressions & Next Steps”
4:15 Ms. Lyn Pickel
“Closing Remarks”